World Thalassemia Day - 8th May 2013
Every year, World Thalassemia Day is observed on 8th May to spread awareness about this inheritable blood disease.
Thalassemia is a blood disorder characterized by abnormal form of hemoglobin, a blood protein whose function is to carry oxygen to the tissues.
It is a inheritable disease, means it is transfered from the parents to the children if either of the parents is affected.According to Thalassemia International Foundation, currently there are 150890 people living with Thalassemia in south asia and 45346 babies are born with this disease every year.
The theme for 2013 is ' The right for quality health care for every patient with thalassemia major and beyond '.
Hemoglobin protein has got two types of chains,
Alpha chain : whose deficiency results in Alpha Thalassemia.
Beta chain : whose deficiency results in Beta Thalassemia.
Thalassemia major results from complete absence of either of two chains, and in Thalassemia minor there is decreased production of one of them.
Shortness of Breath
A complete blood count shows small , abnormal shaped red blood cells.
Thalassemia major requires frequent blood transfusions
While Thalassemia minor doesn't require any treatment.
They include Heart and liver problems like Heart Failure & Hepatitis C. Iron overload commonly occurs due to frequent blood transfusions.
A simple blood test called Hemoglobin electrophoresis can detect this abnormal form of hemoglobin. It should be done by both of the partners who intend to marry. If any one of them is detected to be having Thalassemia, genetic counseling should be availed from a health care professional to prevent the transmission of Thalassemia to their future offsprings.
What you can do:
We can help them by donating blood. Donating blood at least once a year won't harm you & will also make their life easy.
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